Monthly Archives: February 2014

The Race to Yes

“Lucky” isn’t a word that usually comes to mind when thinking about children with Duchenne. The disease devastates kids and their families. It is 100% fatal. But, in a way, for the first time, we are fortunate. We have known what causes Duchenne for over 20 years. Affected children do not produce a crucial protein… Read more »

The Race to Yes Takes The Hill

If you’re visiting the Capitol Complex today, you’re likely to meet a band of sisters – six moms of children with Duchenne. Quite literally the team is “Running the Race to Yes” in an effort to visit the offices of 100 U.S. Senators and each of the 435 Members of Congress carrying an urgent message… Read more »