Monthly Archives: November 2014

This week is the one-year anniversary of the FDA’s flip flop on eteplirsen. Read Tracy Seckler’s piece on the Huffington Post here: 

In recent days, a series of difficult developments once again put the path to approval just out of reach. We need you to join the next lap of this increasingly challenging course. We need you to know first hand exactly what is happening, that’s why we laid it all out in this Google Hangout.

Dear Race to Yes Supporter, It’s been an extraordinary few months since the White House answered over 106,000 Americans who joined the Race to Yes. Because of you, decision makers in Congress and the FDA began to accelerate the process of making safe, effective treatments available to childrenwith Duchenne. You changed the world. Regrettably, the… Read more »