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HUFF POST BLOG: Children’s Hearts and Legs Fail While ‘Flummoxed’ FDA Fumbles

November 11, 2014

This week is the one-year anniversary of the FDA’s flip flop on eteplirsen. Read Tracy Seckler’s piece on the Huffington Post here: 

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The Race to Yes: a grassroots movement sponsored by Charley's Fund and Team Joseph, and powered by families around the world,
to accelerate treatments for this generation of children with Duchenne
.