Dear Race to Yes Supporter,
It’s been an extraordinary few months since the White House answered over 106,000 Americans who joined the Race to Yes. Because of you, decision makers in Congress and the FDA began to accelerate the process of making safe, effective treatments available to childrenwith Duchenne. You changed the world.
Regrettably, the race is far from over.
In recent days, a series of difficult developments once again put the path to approval just out of reach. We need you to join the next lap of this increasingly challenging course. We need you to know first hand exactly what is happening.
Your Personal Invitation
Join us this Thursday, November 6, at 12 noon ET for a LIVE Google Hangout where we’ll give you our sense of what’s just happened,and provide a way forward. Post your comments or questions on Facebook and we’ll try to get to as many of them as possible.
On behalf of all our families, thanks for standing with us.
The Race To Yes