One year ago, you helped us rally more than 106,000 people to sign a White House petition urging approval for safe and effective treatments for Duchenne. Today, a full year later, we are still fighting for the fast and efficient regulatory approach that our children deserve.
The FDA’s actions make it clear that they do not share our urgency. We have more work to do to get them on the right track. We will not let up until all kids with Duchenne have access to safe and effective treatments, and we hope you are still with us to help.
Let’s demand accountability from the FDA. Let’s tell Congress ENOUGH IS ENOUGH. Let’s contact FDA Commissioner Hamburg on her way out the door and the new Commissioner on his way in so the FDA knows that Duchenne is an urgent priority, that we are fully aware of their flip flopping and indecision, that we are watching them closely, and that ENOUGH IS ENOUGH.
Please Take Action Now
The first step is simple: Share this infographic on Facebook, Twitter, Instagram, and everywhere else with @US_FDA and the hashtag #getbackontrack and #racetoyes