Print Coverage
Sarepta Drug to Go Before FDA Sooner Than Expected – Wall Street Journal
Drug that slows fatal disorder inches toward FDA approval – Seattle Times
Family hails FDA action: Approval of new drug won’t help their son but could lead to other drugs that can – Fosters Daily Democrat
New drug gives hope for patients with Duchenne – Pittsburgh Post-Gazette
Once in limbo, promising new muscular dystrophy drug back on track toward approval – The Washington Post
FDA regulators offer makers of eteplirsen a path forward – Pittsburgh Post-Gazette
Hoping for Hope: Two Young Brothers Battle Hereditary Disease – Daily Local News, Pennsylvania
The FDA Returns to its Dark Ages – The Weekly Standard
FDA Head Says Agency’s Work Has Helped Shorten Time Needed for Drug Approval – Boston Business Journal
Parents of Ailing Boys Go Over FDA – The Boston Herald
Parents of Boys with Duchenne Urge Drug OK – Pittsburgh Post Gazette
Mother Urges Signatures for Muscular Dystrophy Petition – Daily World
Local Family Seeks Help for Ailing Teen – Asbury Park Press, New Jersey
Mother Urges Signatures for Muscular Dystrophy Petition – The News Star, Louisiana
100,000 People Sign Duchenne Petition – Rare Disease Report
Petition Urging Fast Approval of Muscular Dystrophy Drugs Gets 100K Signatures – Boston Business Journal, Boston
Duchenne Muscular Dystrophy Petition Reaches 100K Mark – WLWT, Cincinatti
A Parent Fights to Speed FDA Approval in Hopes of Saving Son’s Life – WTOP, Washington
A Race Against Time – Shelby County Reporter, Alabama
This ‘Happy’ Flash Mob May Save A Sick 9-Year-Old Boy’s Life – Huffington Post
St. John Family Seeks Signatures for Son’s Health – NWI, Wisconsin
Petition for a Cure – The Daily Herald
Hope on the Horizon – The Prince George Citizen
Mom Starts Petition Drive to Push FDA – The County Press
The Race to Yes Hits Home in Cairo – The Daily Mail
Newfields Family Fights for DMD Treatment for 11-Year-Old Son – Exeter News-Letter
Parents of Boy with Rare Disease Pin Hopes on Unapproved Drug – Fosters
Family Fights for ‘miracle Drug’ Approval for Ailing Boy – The Manchester Union Leader
Broadcast Coverage
New Hope for Duchenne Patients – CBS 3, Philadelphia
Local Families Fight for Possible Life-Saving Drug – CBS 6, Albany
FDA pays attention to 9-year-old’s petition – NBC 9 News, Denver
New hope for kids with Duchenne Muscular Dystrophy – Fox 25, Boston
The Real Deal: Parents Say New Drug Can Save Lives – CBS 6, Albany
FOX Follow-Up: FDA Commissioner Responds to Mothers’ Plea – Fox 25, Boston
Mothers Push FDA for Experimental Drug That Could Improve Their Childrens’ Lives – Fox 25, Boston
Parents Push FDA To Approve Experimental Drug To Treat Deadly Disease – CBS Detroit
Thousands ‘Race to Yes’ in Fight for 9-year-old with Muscular Dystrophy – KAIT 8
Montgomery County Family Pushes for Drug Approval – WFMZ 69, Philadelphia
Muscular Dystrophy Family Surpasses Goal But Still Needs Your Help – WREG 3, Memphis
New Hope for Hastings Brothers Fighting Same Fatal Disease – KHAS TV 5, Nebraska
Mom’s Plea to the FDA for Quicker Drug Approval – Fox Business
Weekend Feature: Father of Son With Duchenne Muscular Dystrophy Talks About New Drug – NY 1
Oildale Family Fights Duchenne Muscular Dystrophy – KGET 17, California
Petition Moves to White House, but Life-Saving Drug Still Not Released – WHBQ Fox 13, Memphis
New Drug Could Stop Progression of Duchenne Muscular Dystrophy – GoodforUtah.com, Utah
Drug Could Help Kids with Duchenne Muscular Dystrophy – CBS42, Birmingham
Petition To Support Duchenne Treatment – KWQC6
Medical Edge: DMD Research, Family Asking for Help – WKRC, 12 Cincinatti
Ryan Dunne’s White House Petition for Duchene MD Drug Approval Reaches 100,000 – ABC 7, Denver
Friends, Family Rally for Terminally Ill Boy to Get Experimental Medicine – Fox 31, Denver
Family Hopes New, Experimental Drug Will Help Son With Muscular Dystrophy – WLWT, Cincinatti
Nationwide Petition Could Save Greene County Teen’s Life – Time Warner Cable News, NY
12-year-old NH Boy with Rare Disease Fights for FDA Approval of Drug – NECN
Push to Fast-Track Drug for Children with Deadly Disorder – TV 10, Columbus
Family Pleads with FDA to Release “Life-Saving” Drug – Fox Memphis
Area Mother Pushing for Survival of Son – WJAC TV 6, Johnstown
Breakthrough Drug for Duchenne – KOLR 10 Springfield
New Drug Could Stop the Progression of Duchenne – 4 Utah
Family Urges FDA to Approve Drug for Son’s Illness – WMUR 9, NH
Thousands Race to Yes in Fight for 9-Year-Old Boy – WMCTV-5, Memphis
Jenn McNary Segment: A Mother’s Message of Hope – Monsters & Hamsters Online Radio, VT