News Archive

In the News

Print Coverage

Sarepta Drug to Go Before FDA Sooner Than Expected – Wall Street Journal

Drug that slows fatal disorder inches toward FDA approval – Seattle Times

Family hails FDA action: Approval of new drug won’t help their son but could lead to other drugs that can  – Fosters Daily Democrat

New drug gives hope for patients with Duchenne – Pittsburgh Post-Gazette

Once in limbo, promising new muscular dystrophy drug back on track toward approval – The Washington Post

FDA regulators offer makers of eteplirsen a path forward – Pittsburgh Post-Gazette

Hoping for Hope: Two Young Brothers Battle Hereditary Disease – Daily Local News, Pennsylvania

The FDA Returns to its Dark Ages – The Weekly Standard

FDA Head Says Agency’s Work Has Helped Shorten Time Needed for Drug Approval – Boston Business Journal

Parents of Ailing Boys Go Over FDA – The Boston Herald

Parents of Boys with Duchenne Urge Drug OK  – Pittsburgh Post Gazette

Mother Urges Signatures for Muscular Dystrophy Petition – Daily World

Local Family Seeks Help for Ailing Teen – Asbury Park Press, New Jersey

Mother Urges Signatures for Muscular Dystrophy Petition – The News Star, Louisiana

100,000 People Sign Duchenne Petition – Rare Disease Report

Petition Urging Fast Approval of Muscular Dystrophy Drugs Gets 100K Signatures – Boston Business Journal, Boston

Duchenne Muscular Dystrophy Petition Reaches 100K Mark – WLWT, Cincinatti

A Parent Fights to Speed FDA Approval in Hopes of Saving Son’s Life – WTOP, Washington

A Race Against Time – Shelby County Reporter, Alabama

This ‘Happy’ Flash Mob May Save A Sick 9-Year-Old Boy’s Life – Huffington Post

St. John Family Seeks Signatures for Son’s Health – NWI, Wisconsin

Petition for a Cure –   The Daily Herald

Hope on the Horizon – The Prince George Citizen

Mom Starts Petition Drive to Push FDA – The County Press

The Race to Yes Hits Home in Cairo – The Daily Mail

Newfields Family Fights for DMD Treatment for 11-Year-Old Son – Exeter News-Letter

Parents of Boy with Rare Disease Pin Hopes on Unapproved Drug – Fosters

Family Fights for ‘miracle Drug’ Approval for Ailing Boy – The Manchester Union Leader

Broadcast Coverage

New Hope for Duchenne Patients –  CBS 3, Philadelphia

Local Families Fight for Possible Life-Saving Drug – CBS 6, Albany

FDA pays attention to 9-year-old’s petition – NBC 9 News, Denver

New hope for kids with Duchenne Muscular Dystrophy – Fox 25, Boston

The Real Deal: Parents Say New Drug Can Save Lives – CBS 6, Albany

FOX Follow-Up: FDA Commissioner Responds to Mothers’ Plea – Fox 25, Boston

Mothers Push FDA for Experimental Drug That Could Improve Their Childrens’ Lives – Fox 25, Boston

Parents Push FDA To Approve Experimental Drug To Treat Deadly Disease – CBS Detroit

Thousands ‘Race to Yes’ in Fight for 9-year-old with Muscular Dystrophy – KAIT 8

Montgomery County Family Pushes for Drug Approval – WFMZ 69, Philadelphia

Muscular Dystrophy Family Surpasses Goal But Still Needs Your Help – WREG 3, Memphis

New Hope for Hastings Brothers Fighting Same Fatal Disease – KHAS TV 5, Nebraska

Mom’s Plea to the FDA for Quicker Drug Approval – Fox Business

Weekend Feature: Father of Son With Duchenne Muscular Dystrophy Talks About New Drug – NY 1

Oildale Family Fights Duchenne Muscular Dystrophy – KGET 17, California

Petition Moves to White House, but Life-Saving Drug Still Not Released  – WHBQ Fox 13, Memphis

New Drug Could Stop Progression of Duchenne Muscular Dystrophy –, Utah

Drug Could Help Kids with Duchenne Muscular Dystrophy – CBS42, Birmingham  

Petition To Support Duchenne Treatment – KWQC6

Medical Edge: DMD Research, Family Asking for Help – WKRC, 12 Cincinatti

Ryan Dunne’s White House Petition for Duchene MD Drug Approval Reaches 100,000  – ABC 7, Denver

Friends, Family Rally for Terminally Ill Boy to Get Experimental Medicine – Fox 31, Denver

Family Hopes New, Experimental Drug Will Help Son With Muscular Dystrophy – WLWT, Cincinatti

Nationwide Petition Could Save Greene County Teen’s Life – Time Warner Cable News, NY

12-year-old NH Boy with Rare Disease Fights for FDA Approval of Drug – NECN

Push to Fast-Track Drug for Children with Deadly Disorder – TV 10, Columbus

Family Pleads with FDA to Release “Life-Saving” Drug – Fox Memphis

Area Mother Pushing for Survival of Son – WJAC TV 6, Johnstown

Breakthrough Drug for Duchenne – KOLR 10 Springfield

New Drug Could Stop the Progression of Duchenne – 4 Utah

Family Urges FDA to Approve Drug for Son’s Illness – WMUR 9, NH

Thousands Race to Yes in Fight for 9-Year-Old Boy – WMCTV-5, Memphis

Jenn McNary Segment: A Mother’s Message of Hope – Monsters & Hamsters Online Radio, VT